Let's begin with a brain update.
I'm typing this with my eye patch on as my eyes do not cope after a full nights sleep. But we crack on despite. I really hope my eyesight returns.
You may have seen my comment on my last post that the MRI went pretty well.
1. No new growth of the tumour (still the same size but they can stabilize and take a long time if going to shrink. Time is needed here.
2. The discolouration caused by radiation treatment is resolving and not a sign of any new disease. ONE BIG PHEW!!!!!
3. My ventricles are still a bit overfull of fluid which may be the discomfort I still feel. The drainage hole has worked and is working,but once again this is a scenario that needs time.
4. I have lost my cheek bones LOL. Bummer. The fluid caused by fluid retention (steroids) have changed the shape of my face (well I certainly notice it). I laughed at it yesterday as I brushed my hair. I laughed. I reckon that's another step towards recovery mentally at least :-)
A Night Out
Lat night we shared guy fawkes with friends and at their street party. It was a great night. I actually didn't think I could do it. With the amount of pressure I currently have in my head I find noise and lots of people and movement just a bit too much. But with a head full of antinflammatories, well watered and fed the night got better and better.
I think some times distraction has a major role to play when trying to cope with feeling unwell.
Thanks Lisa and Paul! What great spread, lovely company and awesome to have had some fun!
The fire works were brilliant fun for adults and children alike.
and more happy kids....
and some more!!