This time last week Jaz was in surgery. What a week we have all had!
I lay in bed last night thinking about the week that was and how much we have been through. The time spent crying has almost passed and is being replaced with happiness and reassurance that things might be ok.
Luke and I visited Jaz this morning. Caitlin is staying with a friend and Molly and Phoebe watched movies in our regular family room on the ward.
Jaz managed with the help of the nurses to get from her seat to her bed no hoist required. A huge achievement. Her speech is stronger, still very forgetful and confused but we are rewarded with conversation of sorts much more than we ever had before. She practices unscrewing and screwing on the lid of her hand creme, more often than not she fails but it highlights to all in the ward how determined she is to get better.
The ward nurses are very proud of her progress and I was stopped several times today by them expressing to me how pleased they were with her.
The Neurology team are great but the nurses and hospital carers are fantastic. They have such a tough job but regardless of the situation continue to care. I make a point of contacting her carers every time I enter or leave the ward. I think my kindness towards them is returned with kindness and compassion towards my family and most importantly Jasmine.
Today is Auckland anniversary day a 3 day weekend which has made the hospital wards very quiet. No surgeons or physios walking the wards, no extra tests or scans. Its almost like everyone that is not critical is on hold for a few days.
Tomorrow will bring the hustle and bustle heightened by the lost day on Monday as new patients arrive and current patients are assessed. For Jaz that means, another MRI, a possible increased dose of blood thinners, assessment for another possible operation (shunts - Ill explain another day!!) and the results of her biopsy. All of those procedures have consequences so it will be another very busy and emotional week.
For me its a meeting with my work place to discuss our future, Molly starts school on Tuesday and Caitlin starts college on Wednesday. I must admit I am looking forward to avoiding the what am I going to wear arguments when the School Uniform takes over!! Im sure there are a few of you out there that understand where Im coming from.
Balancing school and visits will be difficult but made so much easier with Luke staying this week.
Tomorrow we will also try and find a pillow that has an ipod dock or radio built in. Jaz would like to listen to music. I gave her the iPod today but she got frustrated with the ear plugs. Im sure there must be something small that would be appropriate.
So as the first week closes another starts with many more small steps and hospital visits!